Too sexy for my hair: a cancer blog

Saturday, February 04, 2006

Sore Subject

The results from my Ct Scan are in and they read something like this. Blah, blah, blah, in lung image, one lesion increased in size from 1 cm to 1.2cm and multiple masses in liver Have Not significantly changed in comparison to my prior CT Scan. Once again I find myself emotionally confused. Great, I mean I am happy that my cancer has not grown. Well except for that one cell thats off and doing its own thing. As I have wrote before when does the shrinkage start happening? I am just having a hard time dealing with this. It seems to be getting worse and worse for me emotionally.

As for the new treatment it is called navelbine. It is an older drug. The side efffects include nausea, dizziness, and extreme freakin' pain. My muscles and joints are sore and hurt like hell. I fell like I am stuck in a 70 year old body. When I rise from the bed, couch, or anywhere I maybe resting I wish I had one of those walkers for support. Then once I have made it to my feet I walk like a snail, every step cramping me. Eventually the pain begins to subside after I have moved around for a while, but it never leaves completely. Well hey, thats what those pain killers are for right?

I am not liking my attitude right now. I feel very negative and I hate to write when I am this way. Though this is my blog and I can cry if I want to, cry if I want to- you would cry to if this was happening to you. I have been avoiding writing as to try to prevent bringing other people down, but this comes with the territory. Cancer is ugly in so many ways. I would be lying and putting on a show if I wrote how cancer has blessed my life, changing me for the better. I have felt this way before and I am sure to feel this way again. As for now I will quit with the whinning and look to the future for sunnier days and happier thoughts.

10 Comments:

Anonymous Kristi Collins said...

Lori,
Hi! i left a comment for you once before and have checked your blog often.
The side effects from chemo totally suck. I can relate but not in a way that its continuous. I had my treatments of Adriamicin, cytoxcin,taxotere (6 months) and now its done. (hopefully for good). No matter! i still worry every checkup that my cancer will become metastatic.
Seems like they are giving you a lot of the same drugs breast cancer patients receive.(taxol, navelbine)
they don't know where this cancer originated? then can't tell?
that is what i hate about your situation. i want them to be giving you the correct chemo for the right cancer that you have.

don't be worrying if your feeling negative. your allowed!
fuck this 'think positive' shit!

however, we know what is good in our lives and what we are lucky for..(our great husbands for one).

but we are allowed to feel crappy for what is going on. i'm sure everyone who reads your blog wants you to be honest and real with your feelings.
its helps me and i'm sure it helps others.

from one strong chic to another!
kristi

11:29 PM  
Anonymous Tom, UK said...

Hi

I watched my Mum going through a very intensive course of the stuff a couple of years ago (she had a leiomyosarcoma - a rare tissue based cancer). Her treatment was as affective as anything anyone had seen at the hospital (and across the UK it seems - her case as it was rare generated somewhat voyeuristic from other doctors - not that we minded, more heads are better than one) and aside from being young and healthy, she maintained her emotional control of the situation and doctors seemed to think that this is maybe what makes the difference. By joking and trying to ignore the affects (it's almost impossible I know) and concentrating on laughing and joking with us (even in between vomiting and other pains) seemed to get her through the rough times.

She told me that when it got too bad, she'd close her eyes and try to imagine my kids (her grand-kids) and how she'd play with them and this was her 'Soft, Quiet Place' that hypnotists talk of.

I wish you all the very best in your fight. Treat it for what it is - an unwanted intrusion to your life, that you'll eventually persuade to bugger off and leave you alone (like a mother in law) - we ended up calling the (fairly large) tumour in my Mum's stomach "The f*cking Lump" and dropped the word cancer from our repertoires.

8:41 AM  
Blogger Sunnyside said...

I wish they would figure out a way to make these damn drugs painless and side-affectless. Drugs that simply get rid of the cancer. Yes, it does make me sad to hear you are in pain and are down, but at the same time, I am glad you are letting us know about it. No matter how hard someone might try, there just isn't much of any way to paint a big rosey picture about cancer and the treatments.

Because I know you are hurting, I will very gently send you ......... cyber hugggzzzzzz,

11:22 PM  
Blogger Carla said...

Hi there,

Have you considered making some changes to your diet, to enable your body to fight off the cancer? Perhaps you might consider the raw food diet? It has a remarkable power to help your body to heal itself. We are what we eat, after all.

See this link (among others):
http://www.cancertutor.com/Cancer/Testimonials/Testimonial0001.html

Wishing you the best,

Carla

5:44 AM  
Anonymous gaela said...

ok, checked blog, got some of my questions answered from the flickrmail i sent.

but damn, i have no good suggestions to help you stay positive despite the pain and the not so perfect news (again).
have you tried donuts? ok ok, i know. dumb joke.

honestly tho, i'm at a loss, but i think of you often. and i am impressed that you have kept up this blog, and although sometimes i'm sure it seems like a chore, i hope it is still a little therapeutic.

maybe it is that time, the time for a peets coffee run. i know i could use some, and i'm sure you could too.
are you up late ever?
lots of love to you,
g

2:31 PM  
Anonymous Anonymous said...

I had laser acupuncture for some metasatic bone lesions that came from an adenocarcinoma. It was awesome. Incredibly awesome. After two weeks, three session a week, 60% of the pain was gone. I had ten weeks total and by the end of they felt like bruises instead of hammerdrills inside my skeleton. I went into remission about three months after that. I'm not at all claiming that it was directly related but I think that managing the pain helped me stay more positive and respond better to everything else.
Walk in the light.

5:31 PM  
Anonymous Terri said...

Hi Lori,
I've checked here often and I'm sorry to hear you're feeling poorly right now. What a tough road this cancer trip is.
Sending you good thoughts and mega doses of sunshine. Feel better soon.

8:58 AM  
Blogger yep, it's me.... said...

I think your attitude is pretty dang ok.
lost one brother to leukemia when he was 3 and my other brother to a brain tumor ten years ago.
HE - refused treatment of any kind. we have some kind of depression in our family and i think his took hold when he found out.
so i admire your strength to not give up.
hugs from texas

6:19 PM  
Anonymous Sandee said...

I am pretty bummed myself lately... the reason for me not posting these days, I used to be more positive but you're right... the truth is CANCER SUCKS and it's certainly not for whimps! Navelbine is the next treatment in line for me, my body is suffering from the effects of Taxotere. Lori, you are never far from my thoughts, keep fighting girl!

2:54 PM  
Anonymous Anonymous said...

Hi Lori. Have you looked into Dr. Lorraine Day, www.drday.com. She beat invasive cancer with a natural/spiritual approach. She has books and videos for sale which are also in some libraries. She talks about how prayer and nutrition can cure and prevent multiple ailments. I'll pray for you. Good luck.

10:42 PM  
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