Oh Crap!
Oh crap!!
So the six months of adriamycian/cytoxan I was scheduled for only lasted five months. The good news about this was that I was so, so tired of that drug and was glad to see it go. The bad news is that it did absolutely nothing for me. About half way through the treatment I started coughing. Nothing major at first just a little annoying. Then a few more months passed and my cough became progressively worse. Now not just a cough but at times weezing and shortness of breath. This whole time I try to remain positive. I tell myself maybe the chemo is actually working and this would cause some form of irritation in my lungs. Then the results from the CT Scan are in. More growth in the lungs. Just writing this brings me to tears.
For the almost four years since my diagnosis I had no major symptoms from this disease. Now I am plagued with this cough. It is at its worst in the morning and night. Sometimes the cough is so violent I feel like I may expel a lung. At other times I have actually lost what I had eaten for breakfast. There are no cough medicines that seem to help any. My DR. even prescibed me a steriod inhaler and nada. But at last I have found that anxiety medications do bring just a bit of relief. That is better than nothing and besides I have always been a bit of a space cadet even more so after all these years of chemotherapy.
So what now? Well, I have started a new treatment, 5FU/Oxaliplatin. This type of therapy requires an infusion at the hospital as well two more days of continous infusion by way of a portable pump that I must carry on myself. I recieved my first treatment two weeks ago and it didn't seem so bad. My oncologist prescribed me neupogen (to increase my white blood cells) and I thought that the amount was a little overkill but boy was I wrong. I went in for my second treatment of 5FU this last Tuesday and my WBC and platelet counts were at the lowest they have ever been! "Oh gawd," I think to myself. With my counts being that low it will be at least another two weeks before I recieve another treatment. How is the chemo supposed to be effective if I can't take it as prescribed?
So how do I end this post on a positive note? Well despite the fact that I feel incredibly discouraged, I still must press on. I am not giving up. I am one of those stubborn types.
So the six months of adriamycian/cytoxan I was scheduled for only lasted five months. The good news about this was that I was so, so tired of that drug and was glad to see it go. The bad news is that it did absolutely nothing for me. About half way through the treatment I started coughing. Nothing major at first just a little annoying. Then a few more months passed and my cough became progressively worse. Now not just a cough but at times weezing and shortness of breath. This whole time I try to remain positive. I tell myself maybe the chemo is actually working and this would cause some form of irritation in my lungs. Then the results from the CT Scan are in. More growth in the lungs. Just writing this brings me to tears.
For the almost four years since my diagnosis I had no major symptoms from this disease. Now I am plagued with this cough. It is at its worst in the morning and night. Sometimes the cough is so violent I feel like I may expel a lung. At other times I have actually lost what I had eaten for breakfast. There are no cough medicines that seem to help any. My DR. even prescibed me a steriod inhaler and nada. But at last I have found that anxiety medications do bring just a bit of relief. That is better than nothing and besides I have always been a bit of a space cadet even more so after all these years of chemotherapy.
So what now? Well, I have started a new treatment, 5FU/Oxaliplatin. This type of therapy requires an infusion at the hospital as well two more days of continous infusion by way of a portable pump that I must carry on myself. I recieved my first treatment two weeks ago and it didn't seem so bad. My oncologist prescribed me neupogen (to increase my white blood cells) and I thought that the amount was a little overkill but boy was I wrong. I went in for my second treatment of 5FU this last Tuesday and my WBC and platelet counts were at the lowest they have ever been! "Oh gawd," I think to myself. With my counts being that low it will be at least another two weeks before I recieve another treatment. How is the chemo supposed to be effective if I can't take it as prescribed?
So how do I end this post on a positive note? Well despite the fact that I feel incredibly discouraged, I still must press on. I am not giving up. I am one of those stubborn types.






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Post a CommentStay stubborn, Lori, and forge ahead. Being pro-active is the best gift you can give yourself!
From a fellow survivor ...
I'm so glad to see an update from you and Cary, even if it has to be this one. Cytoxin was a bitch. I'm glad that you're off of it, and hope that the new regimen yields some positive results for you.
Keep on truckin', dear. It's all that you can do.
I love those stubborn types!!!!!
Hang in there girl, I get neupogen shots as well, they have really helped *hugs*
Lori, sorry the treatment you'd been going through wasn't the right one, but there is the perfect treatment out there for you so you hang in there dear. Keep the fight in you going, makes all the difference. Bless you...Arlene (AJ)
Dear Lori,
I think of you lots, and say a prayer for you everyday when I ding my Tibetan bells, and light incense to tickle the universe into bringing you peace during these trying times. Life on this kind of verge is hard to express, but it is life all the same.
Rest well, brave girl.
Maria
Hey Lori!
Thanks for posting. I was thinking everything was fine and well as you have not posted for quite some time.
I truly feel for you and wish that you did not have to endure this tough battle. I know how it can be hard to believe, imagine, and accept at some times but your perseverence has made you a stronger person than you could have ever dreamed of being. Further, your honesty and humbleness of sharing your experience has inspired countless people whom you may not even know.
Hang tough and fight the good fight. You carry more life within you than most people do in 50-100 years of existing!
By the way, I used the neupogen back in 1992 and I never missed a treatment. When I started treatment I was so anemic that I needed 2 pints of blood (given by my father and a family friend).
The neupogen helped keep me on track and on time with the treatments which I probably would not have had otherwise. I hate needles too and I had to give myself injections of the neupogen. They showed me how to do it in the stomach but I could not bring myself to do it without getting lightheaded and nearly passing out. Instead, I chose the nice meaty tissue in my outer thigh which seemed to agree with me better.
Take care my friend!
Stubborn is good!
I'm sorry things did not work out with the last med and am holding out hope for this one.
Kathleen
Dearest Lori,
I want you to know that I'm always thinking of you, always sending good wishes your way! I'm sorry for the Cytoxin setback, I hope the new regimen will work great. Always take care.
Love,
Bean
Lori my friend
Stubborn is the thing that will beat this! Hang in there, its just a matter of finding the right thing and getting to the top of the mountain!
Thinking of you.
Lisa xx
Lori
I got neupogen and neulasta (not at the same time!) and they really helped with the white cell counts, and with keeping the chemo schedule on track.
Stay good and stubborn! I'm wishing you a much much happier 2007...
abi
Lori!!
So glad you're back to posting, but I'm sorry you're not feeling well...come to the Flickr group when you can, we have to catch up with you. We've missed you a lot.
I'm sending you my best wishes for beating that nasty cough, too.
xo,
T
Hey Lori
I was just diagnosed with lung cancer 4 weeks ago. My only symptom is a chronic cough that started in May - and I don't smoke (anything). Once they went from the x-ray (they thought it was pneumonia) I had I developed some swollen lymph nodes so we went for a CT scan and then a Bronchoscopy at which point they determined that it is lung cancer that has moved into my lymph system.
Once they got the diagnoses figured out they told me to take tylenol 3s for the cough - apparently codeine is just the thing for suppressing cancer cough. I've opted for the milder tylenol 1 with codeine - we can buy it over the counter here in Canada - and it works well enough without making me dopy. I don't know if that is available to you but it was just the thing for me and it is a huge relief not to be coughing constantly.
Good Luck!
Laurie
Lori:
I am so sorry to hear that your not doing well. But just know that you are always in my prayers.
I believe that the Lord still heals today like he did back then.
Hang in there. and if you ever need to talk just call any time day or night.
I Love you.
Aunt Joann
Hi Lori,
I have just stumbled into your blog..... doing reseach as my 22 y.o nephew has just been dianosed with hodgkins disease. He starts his chemo on wednesday 20th december and we are pretty certain he won't be able to join the family for xmas. He is handling the news so well (better than the rest of us!!) and has been journaling since finding out. I will be forwarding on this site as I found it helpful and so very positive. Do you have any tips on what sort of things get you through treatment as I would like to get him something useful for the moments he will have?
Thank you so much for sharing your life and moments.
Much love for xmas and the NEW year
Meg (Australia)
Helo Lori. I know we don't know each other but I found your site through Sandee's and your story has brought me to tears.
You remind me a lot of my friend Andrea. She had breast cancer. She was 26 when she was diagnosed and I got the blessing to find her online when she was 29. She was an amazing person, as I can see you are.
My thoughts and prayers are with you. Never give up. "Where there is life there is hope".
I am going to add you to my bookmarks and will continue to check and see how you are doing. :)
Mollie
Hi Lori,
I,m a 66 year old man and just recently found out I have stage IV gastric cancer. I'm on a 24/7 5FU treatment and I was just reenstated after being stopped for low cell counts and resulting anemia. Your experiences and attitude give me hope and faith that it's all worth it.
Stay strong and may you and your husband enjoy the new year.
Ralph.
This post has been removed by a blog administrator.
Lori,
You have been on my mind. You are still in my prayers!
lots of love!!
Dana
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