Too sexy for my hair: a cancer blog

Thursday, June 30, 2005

Please... Help Me Help Them

Every single day, 30,000 children die, needlessly, of extreme poverty.

On July 6th, we finally have the opportunity to stop that shameful statistic.

8 world leaders, gathered in Scotland for the G8 summit, will be presented with a workable plan to double aid, drop the debt and make the trade laws fair. If these 8 men agree, then we will become the generation that made poverty history.

Want to help make this happen? Click ONE or both of the following links below...they don't want your money, they just want your voice!


P.S. Bono for President!

Wednesday, June 29, 2005

Sleepless in Sacramento

Insomnia...It happened again on Monday night/Tuesday morning. I finally crashed around 3a.m. then I awoke at 6a.m. I was absolutely useless. I felt as if my head was clouded with a million things at once, but my body was moving so slow. It is so incredibly frustating, and I felt as if my skin was crawling. So I spent the better part of the day trying to force myself to sleep. I took Valium and managed to cat nap a couple of hours. Oh, it was heavenzzzly! I awoke when my husband came home. I Walked around like a Zombie, then it finally occured to me to take a Ativan. IT WORKED, LORD HAVE MERCY,! IT WORKED. By 9p.m. I was out like a light!

Now I have got the fatigues, and after I post this I plan on sleeping some more.
It gives me much joy to be able to say nighty, night.

Tuesday, June 28, 2005

Laughing Harry


Laughing Harry
© suden 2005
I blogged this photo from Flickr.com. Every time I view this photo of Harry I can't help but smile. Dogs are the greatest in that they always live in the moment. Never giving a thought to yesterday nor thinking about tomorrow. Laughter is one of the best forms of medicine. Harry, Thanks for your contagious smile. : )

Sunday, June 26, 2005

Sleep Glorious Sleep

Yes it happened. I finally crashed around 9:30 Saturday night. I was so exhausted that I put up a fight with my husband when he tried to move me from chair to bed. I thought if I tried to get up from the chair I would just collapse to the floor, but my sweet husband carried me to bed. I slept like a bug in a rug.

I woke up feeling as if I was slightly hung over. Had coffee, breakfast, and spent the rest my Sunday making novelty soaps with my mother-in-law, in which to sell to make money that will go towards our Too Sexy For My Hair group, raising money to brighten the days of thoughs of us who are currently going through treatment. Some good news. I am tired and ready for bed and it is at a reasonable hour this evening.

Some more good news, for those of you who read my last post titled "Dad," today was a better day for Steve and his father. : )

As long as my brain allows it now time for this one to catch some sleep.

Saturday, June 25, 2005

"Dad"

Steve is a a new friend in my life. We only communicate via email, and we met through a Flickr site I had put together for anyone who has or had cancer including family and love ones who seek support. Back to Steve. Steve is really going through a tough time right now. His dad has cancer. As I write this now I realize I call him dad, because I don't believe Steve has every mentioned his name. Maybe he has, and my chemo-head can't retain anything. Some times I think its better not to remember some of this grief. Back off track again...anyways I don't mind calling him dad as long is Steve is o.k. with it. Steve last wrote to our site this morning with some heartbreaking news. What was so heart breaking was he said watching his father go through this was breaking his heart. I wish there was something I can say, but at times like these What do you say?

I lost my father suddenly, never got to say good bye. Steve maybe thats why I feel such a connection with you and your father. I wan't you to know that all day today I said a little prayer and sent good Qi to your dad every hour. I also want you to know that right before I sat down to write this post I got one of those I don't know "premanitions" and it was a positive one. : ) I really want to tell you your dad is going to pull out of this. I really, really do. I also don't want to be wreckless with my words, but I saw him better today. Take care my friend.
"Dad" en challa


Dad 02-21-05, © Lori Miller 2005.

I keep Going and Going and Going

I received my weekly dose of Taxol yesterday after noon. I came home and slept for about 4 hours. My husband came and woke me off the couch at 1o:00p.m. and tried to put me to bed, but it just didn't work out that way, in fact I have been awake now, minus the 4 hour nap, for about 36 hrs, now. I am really starting to feel dazed but still not ready to lie down. I also took 2 yes 2 whole Valiums last night or rather yearly this morning... still no sleep. Now I am begining to feel frustrated. Oh taxol, I don't understand you. Can't live with you ,can't live without you

Thursday, June 23, 2005

There are so many of us

It's not just me...if you or someone you love is fighting, survived, or has been robbed of their life because of cancer please take one moment to visit a new community. A place to seek refuge, a place to hear words of encouragement, a place to celebrate, honor and remember life. It has opened my eyes and my heart. It's brought me comfort . I think it will do the same for you. Just click here and browse. Membership is free. Please join our group. If you like what you see, please spread the word.

Thank you for your time!
Lori, aka**starburst**

:)

Vicki Oct, 2000Waiting

Wednesday, June 22, 2005

Hey Kizzy

I decided to do this blog as a form of therapy for myself. Anyone who reads my blog will be reading intimate details about myself and my life. I just decided to be real and deal with this head on. So no, your question is not too intimate. It has only inspired me to open up even more. For those who are just tuning in, Kizzy, my sister-in-law, asked me what do I think when I look at this particular picture of myself.

Moments after I posted the picture I thought, OH GOD LORI, What were you thinking? That's a horrible picture of myself. I ridiculed myself. I saw the weight I have gained, the lack of eyebrows, eyelashes, and the thinning of my hair and thought what a mess I have become. Now, just after writing the above, I say to myself, "it's not what you did to yourself, it's what the chemo did to you." Then the anger in me arises and then I say, "Fuck Cancer." "I want my life back"..."Why me?"....But you know, I think I am slowly learning the answer to the, "why me?"


Kizzy,
Thanks for the therapy
Love ya!

Currently Che-mowed


Chemo
© Lori Miller 2005
My most current self portrait. Taken during my last treatment June 17,2005.

Monday, June 20, 2005

Father's Day 2005


Grandma Lorene on 6/19/2005
© Lori Miller 2005
Where do I start? I had quite an emotional day yesterday, but I won't go too far into detail. I made plans with my grandma Lorene who is an 86-year-old fragile yet feisty woman. Included in these plans was my older brother, who we will call P-Dog. "P" suffers from a mental illness. Our plans were to go visit the gravesite of my father who died June 18th, 2001, which happened to be the day after Father's Day on that particular year. I enjoyed my time with grandma, we had lunch, cut wildflowers and arranged them in a bouquet for my father's resting place. We sat under the sun on the hillside where my father was laid to rest in a cemetary in the town of Placerville, California. Between the three of us, grandma, P-Dog, and myself, we remenisced and such. The sun began to set and the mosquitos began to bite so we felt it was time to go home. On our way out we said our goodbyes to our father...until we visit again.

As we began our drive back to my grandmother's house my brother asked, "isn't there a plot of land that belongs to the family that lies next to father and grand father?" My grandma replied "yes". My brother then asked, "who will be buried there?" My grandmother responds," well I thought it would be nice for your sister (me) to be laid to rest." I then replied thank you grandma, but I am going to allow my husband to decide what to do with my remains. My grand mother then proceeds to inquire on the current status of my prognosis. I then explained that my last C.T. Scan was good. Then she asked, "Why can't they operate?" I then reply, "It's too late for that grandma. The cancer has already spread." I reminded my grandma as I reminded myself that chemo, a healthy diet and the love and support of my love ones is the hope I hold onto to get me throught this time of uncertainty. Oh yes, I am still waiting for the miracle cure. :)

My father's passing was sudden. He died alone in his home from heart failure and was not found until the day after, June 19. At that time I was all caught up in the hussle and bussle of life and could not seem to find the time for a Father's Day visit or phone call. To this day I carry sorrow and guilt for not taking the time to appreciate my father on his special day. I wish that I could turn back the hands of time and say "goodbye, I love you and all is forgiven."

What I have learned from my experience with cancer thus far is to fully appreciate my family and friends. Live each day as if it is your last, no regrets. Forgive and forget while you can, it is the healthiest thing you could do for yourself. A blessing in disguise has been the knowing that if I should go sooner than I want, at least I have the opportunity to say my goodbyes. :)

Wednesday, June 15, 2005

P.S.

I still say, "fuck cancer!!"

I Can't Really Complain

I recently just started this blog as a form of emotional therapy for myself and I must say it has been one of the best outlets for me since I was diagnosed in November,2002. I think I was in denial of the seriousness of my cancer all the way through 2004. I think I was trying to shelter myself from the trauma, the truth. I won't go into detail now, but prior to my diagnoses I had been the victim of many traumatic experiences all ready.

I don't seek any pitty from others. I understand life is rough and it can always be worse than it is. I am fortunate enough to be an American and to have access to some of the best medical care in the world. At times I think of how different things would be for me if I was born in a third world country... Maybe I would have passed away by now?

I am also fortunate to have found the one true love of my life. I would do it over and over again for my husband Cary.

I just want to thank everyone who has been to my site and has left me encouraging words. Life is short, love those around you. Count your blessings. :)

Love and Peace,
Lori

Tuesday, June 14, 2005

My Peoples

Thank you Jamie, I hope everyone is feeling better now. Ride safely. :)

Thank you Eric, I love dreams like that. I've been dreaming recently of child birth! I will hang on to that one and hope it comes to pass.

Thank you Chris, I hope all is well with your fiance.

Thank you Christine, I would love some pics. of your mom. I hope she is doing well. You know I also had a drug interaction involving some anti nausea meds. I lost control of my muscles and I went into a convulsive like state for six hours! I was in tears from exhaustion. They finally gave me morphine to put me to sleep. Then even after falling asleep my muscle continued to contract. It was a nightmare.

Scott and team, You guys kick ass! I will leave a link to your site wherever I can. :)

Francesbean, give my regards to your father. I'm hoping to myself that his cancer was discovered at a early stage. Will you keep us posted through flickr?

Thank you Kiz, sending all this love my way, it means so much! I will check out Tribe.

Day IV

For the last six months Taxol has been my poison and according to my recent c.t. scan it is holding the cancer at bay so this is good for me...Right? Yes, I know it is better than the alternative so I take my poison without hesitation. My regimen is three weeks of treatment, then one week off. After all this time I have noticed this pattern in my mood on the fourth day following treatment. I feel a sense of being completely overwhelmed and my anxiety slowly begins to rise. Soon after that I become this sobbing mess or I seem to shut completely down, even from myself. I will soon call my husband at work as I always do on this fourth day. He comforts me and trys to work me through my mental anguish. I wonder, Does anyone else on taxol experience this or is it just me? I also feel heavily fatigued this time around. Maybe its because I just had three weeks off . That gave me quite a bit of time to recoup. Now I am feeling slammed and I'm on my way to the couch to catch some Zzzz's..

Monday, June 13, 2005

Spoiled


Hoodie1, © Lori Miller 2005.

My husband Cary had this hoodie made for me. He is the sweetest thing.

It was hand-made by the great folks at Neighborhoodies.com...you should check them out : )

Friday, June 10, 2005

Sound's Like...

I was officially diagnosed on November 27, 2002. This just happened to be my 27th birthday. It was also just 7 weeks after my marriage to my husband Cary. He means everything to me. I could, and will (one day,) write a post about him. (If you're reading this, I love you Coffee Bean!)

My new Oncologist: Dr. Lisa Law, M.D. Her new patient was a 27-year-old female with multiple liver and lung masses. Stage IV (metastatic) adenocarcinoma (cancer of an unknown primary). Come again? Ad-duh-no-carcinoma. I couldn't remember how to pronounce my cancer for the longest time. Then started to use the old method, sounds like "I don't no carcinoma." Adenocarcinoma. Just like that I was able to pronounce and define my diagnoses. At the time I also didn't understand "Unknown Primary." My personal definition of unknown primary is that it's a bastard cancer. It has a place to grow and eat but where the hell did it originally come from?

For the last three weeks I have been blessed with a vacation from treatment. It's been nice. I was able to accomplish quite a bit of gardening : ) Unfortunately, I must resume treatment again today. After re-reading this post I can tell that I'm definitely feeling a little pissed off and depressed right now. That just comes with the territory. That's just one of the many side-effects of chemotherapy...there are quite a few others, both physically and mentally, but that's a different post for a different day.

BYE, BYE

Wednesday, June 01, 2005

Good News, Bad Luck

You know I never thought of myself to be supersticous but last Thursday I was driving along...la dee dah, then out of no were a black cat runs out in front of my car. I slammed on my brakes to avoid hitting the feline, and thought sarcasticly to myself, oh no bad luck.

Friday morning I had a very important DR's appoinment. A week prior to my appointment I had a CT Scan preformed on me and I was waiting and waiting and waiting for my results. When my Dr. walked in the room I could tell she had good news. When the news is not so good, she walks in the room and seems a bit hesitant and makes little eye contact. If its good news she walks in, smiles and immediately makes eye contact. So back to my results...The cancer is stable! NO new growth. :) Being on chemo for 2.5 years I would rather hear something like; oh your cancer has miraculously disappeared. But compared to my previous scans the cancer is not spreading. Now Martha, that is what I call a "Good Thing". I was also scheduled for chemo treatment on this same Dr's visit but I had a minor tooth ache the night before which turned to a impacted, infected wisdom tooth. So chemo was postponed. Then I immediately needed to call my dentist and have my wisdom tooth extracted. My dentist is so on top of things. He had booked me with an appointment with an oral surgeon that afternoon. So one side of my face was swollen and sensitive but hey, no treatment for another two weeks! :)

Saturday I took it easy and ate ice cream. By Sunday my gums were begining to feel better and I was up and moving around the house and cleaing. While I was cleaning I accidently tipped a cup of water onto my husbands lap top and our only link to the internet was down. The keys were not working even after we had let them dry out. So Monday we went out and dug ourselves even more into debt and bought a new computer.
Was the tooth and the computer coincidental? Or was it the black cat?
No matter, what is most important was my scan results.


Thanks for your time, I will write soon again.